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« Special conditions
 Category nameSpecial conditions
 OrganisationCraniofacial Support Group
 House NameBirmingham Children''s Hospital
 AddressSteelhouse Lane
 TownBirmingham
 PostCodeB4 6NN
 ContactSteve Moody
 Telephone no.0121 333 8147
 EMailsupport@craniofacial.org.uk
 Web Addresswww.craniofacial.org.uk
 CommentThe Craniofacial Support Group aims to provide support and information to families and individuals with any of the conditions or syndromes having Craniosynostosis or Craniostenosis as a common thread, including:
  • (Simple) Craniosynostosis including Scaphocephaly, Trigonocephaly, Plagiocephaly, and Brachycephaly.
  • Apert’s Syndrome
  • Crouzon’s Syndrome
  • Cloverleaf Syndrome
  • Pfeiffer’s Syndrome
  • Saethre-Chotzen Syndrome
  • Van Buchem’s Syndrome
  • Soto Syndrome
  • Proteus Syndrome
  • Hypertelorism
  • Fronto-nasal Dysplasia



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