Supporting families who have a baby with Down Syndrome

Finding out that your baby has Down syndrome can be overwhelming and worrying. Whether you find out whilst you are pregnant or after the birth, you will have many questions and concerns.  All babies are unique and bring so much love and joy to your family. The future for any baby cannot be predicated but there is a lot of support for new parents and it’s important you get the right support for you and your baby.

Below you will find a list of useful websites to support you along your journey. Remember you are not alone and there are lots of local support groups in your area and other parents you can talk to!

A Facebook support group for mums-to-be expecting a baby with a high chance/confirmed result of having Down syndrome

A Facebook support group exclusively for new parents of a little one (aged up to 18 months) with Down syndrome and based in the UK.

A collection of personal experiences written by young people with Down syndrome, their friends and family

The Down Syndrome Association website has a wealth of information for families. There is a new parent pack available

The Down Syndrome Association has a page with information about where your local support group is. Local support groups provide free advice for families and services for children with Down syndrome.

A website from a mum’s perspective and a blog about their journey so far. Also available as a book called Don’t be Sorry. 

This Developmental Journal for babies and children with Down syndrome is a set of charts that families use to record what their child is able to do as time passes and they learn new things.

The most important thing is to give yourself time to adjust, and spend time with your new baby. The rest can come later!